Lucca will start her Stem cell transplant & it could kill her

[Doc Nock]

Amen, Charlie...

It is amazing what the human body, even one that small, can endure when God wills it to be.

Lord in your Mercy...

[MR BILL SHORTY]

Dear Lord please help this child            

[Big Ed]

I have been following this very closely and have had Lucca and her family in my constant thoughts Prayers. I ask God publicly to please ease this beautiful child's pain and to give the family that beautiful smile that Lucca so graciously needs and wants to share.

[zarch]

prayers sent for lucca and family          

[4dogs]

Its been four days. Hopefully that treatment is over and she is on the road to recovery. I'm praying hard. God Bless.    

[BenBow]

Here's the last update. Can't imagine how hard this is on the parents.
"Lucca is still struggling. Her belly is measuring 54 1/2 cm in diameter. That's the biggest it has ever been. She is in so much pain and is having a very difficult time breathing. Last night was awful. She could not get comfortable to sleep and her pain couldn't be managed. Her heart rate was rising and her blood pressure was low. It's really frustrating. They gave her lasix to try to get her to pee out the extra fluid but its not working that well. She is swollen all over and pale and gray. I think she is even turning a bit yellow. They just did an ultrasound. As much as I want it to show nothing I want it to show something so we can fix it. I hate seeing her suffer and not being able to do anything. And no one is sleeping. I know she is exhausted. The all nighters are killing everyone.

We have not had any bloody stool since yesterday. They have changed to a blackish green. I don't know if that's good or bad. They tell me her white blood cell count is still rising. It's not 1 yet but .09 or something. They continue to reassure me it will get better but it may get worse before it gets better. It just is really hard on everyone. I can't imagine her having to be in more pain. They talked yesterday about putting her on methadone. I immediately thought wow that's pretty hardcore. At this point I'm up for anything though just for her to be able to have some relief.
Verlin and I are completely exhausted. We have been up most of every night since we arrived in the ICU a week ago. It's been really hard. The little girl next door passed away yesterday.  :(  It was really sad to watch. When I returned from taking a shower her family was outside the hospital crying and outside her room crying. I wanted to start crying too. I can't completely understand how they feel but I think I have an idea. "

[zarch]

lord please hear our prayers for this little please ease the pain for this little girl and hurt for these poor parents i cant even imagine in gods name amen              amen prayers from rhode island

[Doc Nock]

My heart aches with these parents...

Lord, In YOUR awesome Mercy...hear our prayers.

[Big Ed]

       

[BenBow]

Lucca is doing better praise God! Her white count is near normal. She still has a tough go but your prayers are working.
 

[vintage-bears]

God bless her!
I will keep her and her family in my daily prayers.
Such a beautiful ANGEL!

......Philip

[stringstretcher]

So precious.  Continued prayers for all healing.

[4dogs]

                              Praise be to GOD!

[BenBow]

Here's mom's update. I can't thank all of you enough. God's blessings to you all.
"What a difference a day can make. Lucca is doing a lot better. They were able to wean her off the sedative which meant we were able to move back to the sixth floor. We have our old room again and we have a bathroom!    The room is way bigger and more comfortable and no community bathroom is great. It's like I went from being at camp to being in a hotel. Her belly pain seems to have gotten much better. She isn't nearly as sensitive. She sat up today a few times and played with toys. By this evening I got a smile. It was so nice to see. They wanted me to start feeding her pedialyte so I tried this evening and she drank 3 ounces. She held onto her bottle for a long time. I think she missed it. The doctors were so excited to see her progress. There are still some areas of concern. Her belly and her heart rate. They feel her belly may take time to go down. Her heart rate has been high all day. They feel it could be withdrawal from her pain meds. So we will have to wait and see. But all in all she is doing great. I couldn't ask for more. To see her smile today meant so much. It means she really feels better. Our goals now are weaning off of pain meds and being off antibiotics. The stem cell transplant team told me today that by Monday they should have a really good idea of how much longer she will have to stay in patient. I asked if it may be a couple weeks and they thought that was way too long. After we are discharged we will be at the Ronald McDonald house for 1-2 weeks depending on how she is doing and how her blood levels are. I don't know many specifics in terms of when radiation will start, what Lucca will be allowed to do, or time frames but I am sure that will all be clear over the next week. But for today she has made incredible progress and that makes me very happy. I love this baby so much and I am so glad to not see her in such agony. Yay for her today!"

[Big Ed]

Fantastic!!!

[Doc Nock]

Touching beyond words!

Thank you, Lord!

[Rookie@51]

And again I weep with JOY! God is GOOD all the time. Lord thank you for this report. You are AWESOME and in power.  Thank you for that and never let us forget it.

[MR BILL SHORTY]

Thank you LORD          

[VictoryHunter]

Such a beautiful baby. My prayers go out to the child and her family. Thanks for the update. God is good!    

[zarch]

thats great glad to hear prayers sent            for lucca and family